My two year old is almost completely nonverbal. She has a couple of signs that she knows, but tends to use interchangably. And she can say mama and dada, and DAAAA for her older sister.
But mostly? She doesn't talk. She also doesn't walk. She's had a very long and rough road, and her story is one that can't quite smush into a single blog post. Mostly, though, she has sensory issues.
FUCK SENSORY ISSUES.
You guys. Sensory issues are total shit. I hate them. I freaking hate them. If you've never been around a kid with them, you can't even begin to understand what it's like. Livie can be an absolute doll. She can be sweet and loving and charming as hell.
Once in awhile, though? She gets in a sensory funk. I don't know how else to describe it. Maybe she gets over stimulated. Maybe it's new sensory input that's occurring because she has new-ish leg braces. Maybe it's her age. Maybe she's getting teeth. Maybe she wanted Rice Chex instead of Cheerios but she can't talk so she couldn't tell me and it just pissed her off and she lost it.
Today she lost it. Completely, totally, utterly lost her shit.
From about 9:30am, until she napped at 12, she screamed. Rolling around on the floor, flailing her body. Arching her back, and kicking the floor, and just being SO VERY ANGRY. Except NOT angry. Just incapable of coping with anything. Nothing made her happy. Nothing made it better.
A month ago, I'd have put her in the tub. Water made her better last month. This month, though, water makes her mad. I don't know if it's the sound, the sensation. The echo in the bathroom, or the way the water makes the light reflect on the wall. But this month, she hates baths.
She's two, and we've been dealing with sensory issues since the beginning. In many ways, they're getting better. She eats now, really well, and she sits up now, which was a HUGE thing this winter. We can hold her, and hug her, and kiss her, and it's okay. Six months ago it wasn't okay.
But, other things aren't okay now. Other things, new things, send her into sensory overload.
The problem is that I have no idea what those things are. I have no idea what I can do to help her cope with them, and I don't have a clue what will work.
What worked last month doesn't work this one. Things I've tried in the past that didn't work, now might.
Parenting a child with developmental delays and sensory issues is extremely difficult, in a way that's VERY different from the parenting of a typical child. I have three other children, all of whom are quite typical. Completely 'normal', as it were. The struggles I have with them are more routine. Hard, yes. But routine. With my other children, there's a rhythm to parenting that I can figure out.
I may not know everything, but with my other children, I don't feel like I'm trying to complete a jigsaw puzzle that's missing half the pieces. With Liv, I often wonder where the fuck all my damned pieces are.
With Liv, I often feel very, VERY inadequate at parenting. Like there's something I need to be doing for her that I'm not. As if there's a mystery I haven't yet solved. Pieces of that damned puzzle, missing.
She's awesome. She's quirky and funny and sweet and snuggly, and I honestly adore her with every part of my soul. Don't mistake my lack for hers.
She's not lacking anything.
Me, though? MAN. Some days I feel like there's a big black hole of shitty parenting that I can't stop falling into.